These are various resources I’ve come across and referenced in some way and found them worth sharing. I will update this periodically as I clean up my research.
- This is not intended to be a comprehensive list in any way, nor a formal endorsement.
- I’m not a medical professional, so please bear that in mind when reading my summaries and thoughts.
- Where possible, a book has been linked to its page at the Toronto Public Library (TPL), my amazing local library system. It should have all the information if you need to look it up at your own library or favourite bookstore. If you’re interested in buying the book and it is available, please consider doing so through the TPL site – they have an affiliate program where a portion of the sale will go to them for use in funding their programs and services. Thank you!
Still frequently thought of as “end-of-life care”, palliative care focuses treating the whole person, especially in areas of pain management. Currently, modern medicine focuses heavily on cures, often resulting in extreme pain or discomfort. A growing movement is focused on bringing palliative care into other areas of care.
- World Health Organization – Definition of palliative care
- Canadian Virtual Hospice – Online articles, forums, guides to other resources
- GetPalliativeCare.org – Centre to Advance Palliative Care (US-based)
- Palliative care improves quality of life, but patients link it with death
- PalliMed.org – Hospice and palliative medicine blog
The following includes more technical medical papers.
- 2018 // Effectiveness of palliative care services: A population-based study of end-of-life care for cancer patients – Patients who received palliative care experienced significantly lower rates of all indicators of aggressive care such as hospital admission, emergency department visits, intensive care unit stays, major operating room procedures, and lower in-hospital death.
- 2016 // Randomized trial of early integrated palliative and oncology care – Early palliative care improved quality of life, mood, coping, and the frequency of end-of-life discussions in patients with newly diagnosed lung and gastrointestinal cancer.
- 2015 // Enhancing Palliative Care in Nursing Practice – Projects exploring opportunities to support greater use of palliative care in every care setting.
- The Complete Bedside Companion: A No-Nonsense Guide to Caring for the Seriously Ill – Extremely detailed and comprehensive US-focused book
- Hospice Toronto resources – including a complete PDF of A Caregiver’s Guide – A Handbook about End-of-Life Care
- Handbook for Mortals (free online)
- LotsaHelpingHands.com – free service to set up secure list of activities for supporters to view/signup for, and post updates to support network